Healthcare systems represent a complex ‘system of systems’ resulting in challenges in coordination, access, communication and integration. This leads to lower quality and increased cost of care. The only constant in the care delivery system is the patient and the patient’s caregivers. This has led to a reimagining of the care delivery process from the patient/caregiver perspective—so-called patient-centered care. The interaction of the patient/caregivers with their providers is termed the clinical microsystem. The NHGRI-funded ClinGen consortium is creating a resource to provide information about actionable genomic information to clinicians at the point of care. As the integration of the resource into the healthcare system was being contemplated, the consortium agreed to explore a patient-centered conceptual framework.
Not all of the resources and data flows currently exist. The system map will be continually updated to reflect the progress of the ClinGen Project. Check back frequently for updates.